A friend asked me to pass a request on. Something SIMPLE, FREE and FAST that you can do right now....
Something that could give a little girl the chance at LIFE.
The backstory---A family in NY has three girls. Their youngest, Hannah, was progressing normally until about 3 years of age. Suddenly her foot started to turn in. They took her to some doctors who finally diagnosed her with a terminal neurological disease, which was devastating since it was an orphan disease (meaning, that so few people have it that there is little research, and no funding.) Thus, they were given a death sentence for their child.
Her parents started Hannah's Hope Fund to raise money to cure the disease. In the past 2.5 years, their small community in Upstate NY has raised over 2 million dollars. Hannah's parents hired a slew of researchers to figure out the GAN (Giant Axonal Neuropathy) gene. This month, they are competing for a Pepsi Refresh Grant for $250k. This grant will allow Hannah and the other children with GAN to go through the human clinical trials in November 2011. They have the gene figured out - the way to fix it now....they just need to raise money to finalize the process.
This Pepsi Refresh Grant will pay for the clinical trials. It will allow Hannah (and other children with GAN) to live a long, healthy life!
Voting is easy - you can text your vote daily to 73774 (which stands for Pepsi) and the message is 104051 (Standard text message rates apply.) If you have to pay for text messaging, you can vote online at refresheverything.com using your email address. You just create an account, sign in and listen for the pepsi can opening and pouring, then click on $250k and find Hannah's Hope Fund. They are currently in 1st place, but there are so many people vying for this grant, we need to keep up the fight!
If you would like more information--here is Hannah's website: http://hannahshopefund.org/data/index.php?option=com_content&task=view&id=25&Itemid=39
Leave a comment on this post if you go and vote. I will randomly select one person to receive the fabulous NEW collection from Echo Park paper--Be Mine! You have until Sunday night at 8 p.m. (central) to enter to win! *You can continue to vote all month long though! The winner will be announced on my blog on Monday and will have until Wednesday night to email me their address.
Thanks and xo. Off to hug my children!
43 comments:
I voted for Hannah. Great cause.
Done Cammie. I voted for Hannah.
So simple to do.
I voted for little Hannah. Sending up prayers also.
I voted, Cammie. Thanks for passing this on.
A great cause and so easy to vote. I pray they win the grant money!
I voted, I also live in upstate NY so this is near and dear to me, thanks for sharing!
I voted Theresa. Sending prayers and hope for Hannah.
thank you for bringing this to my attention! I voted!!
happy weekend!!
Mornin' Cammie! I voted :) Praying for Hannah!!! Have a great day...
Thanks for posting this, Cammie! You can also vote if you are on facebook. Be sure to "Like" Hannah's Hope Fund for GAN on FB too! My niece, Sheyenne, is another one of the GAN children and will be participating in the clinical trials and will benefit from the Pepsi Refresh grant. We appreciate everyone's support!
I voted! Thanks for sharing.
LOL Uhhh Cammie???? I still love you!!! Even though you apparently impersonated "Theresa" in my mind! LOL
Cammie, I voted and will continue to vote. Please everyone vote. If we can save one child just by the simple action of voting, look what we as a group have accomplished. No one should ever have to go through the agony of the death of a child. I know.
I voted, thanks for telling us about this. something so simple really can help others.
chris
mcwooten1999@carolina.rr.com
Happy to send in my text vote! Thanks for sharing this need. What an easy way to help a precious child during this holiday season!
Aren't you so sweet???? I guess that is what I love about you already!!! Of course I voted and will have my hubby do the same and keep doing it daily....I am setting intention for Hannah's Hope Fund to be picked! Hugs....
Absolutetly voted and sending many prayers and hugs to the family, lil Hannah and the researchers working with the family! Cancer has sadly reached my family twice and it's unbearable but knowing others care and are making a difference means a more than words could ever express - Blessings to you! x0x0
I just text my vote! What a horrible story though! That poor family and that poor little girl!!!! I really really hope that she can get well! I hate hearing heartbreaking stories like that! Esp. now that I have children of my own. I'm going to go hug my kids as well!
Thank you for letting me (us) know. Off to vote!!
I texted my vote in! What a wonderful thing to do! Thanks Cammie!
Voting for Hannah and sending on information to my family and friends.
from a personal standpoint, I so understand the need for funding...I voted! I had never heard of this so thanks for the link for both! Happy weekend!
Cammie, I text my vote for Hannah. Great cause. Have a great weekend. By the way Cammie, love the new look of your blog.
I read Hannah's story and cried...then I went to the pepsi challenge and signed into Facebook through there so it would be posted to my wall so my friends could vote too.
Hannah is still at #1
I would love to win this prize but most of all I have hope for Hannah :-)
Why do we have to vote for a cure? In our country (Australia) we spend billions on welfare so people don't need to work and our medical system is falling apart! I am voting so Hannah can grow and be a productive member of our world!
Cammie, thank for letting me know about this! How wonderful to give us a chance to vote for the cause! And even chance for some goodies. I love putting my vote in for things like this!
I appreciate your informing me
about the Pepsi Refresh Grant
Program! I must have been
living under a rock...I voted
for Hannah's Hope Fund and
I hope her fun reminds #1.
Many thanks, Cindi
jchoppes[at]hotmail[dot]com
Voted for Hannah.God Bless!
Donna G
So sorry to hear about Hannah!!
I will be praying and hope that she wins!!
Thanks for posting this for us to be aware about her and this medical condition.
Hugs to you!!
I just voted. Thanks for informing us about Hannah! God bless her and her family.
I voted and did a donation. I am also posting on facebook! This really touched me. The little girl reminded me of my daughters and she deserves every chance to live! Thank you for sharing!
Thanks for sharing this, Cammie. What a sweet little girl.
I gladly casted my vote. I am believing that she will be healed.
I voted. Please keep us updated.
Hi Cammie - I have voted for Hannah and will continue to do so until the end of the month. Thank you so very much for bringing this to our attention. I hope and pray they will win the grant and find a cure. Hugs to you, Sharon :o)
Just added my vote to this wonderful cause! Thank you for sharing this information.
I voted via email and text for Hannah! This is such a worthy cause!
What a great cause. I voted for Hannah!
I wanted you to know she has my vote!!
Thank-you for the information about Hannah, I am off to vote right now then I will have the rest of my family vote too!!
love your cards ,and what a great cause bonnieg313@sbcglobal.net
you got my vote,and well get others to vote also. bonnieg313@sbcglobal.net
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